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Metastatic Prostate Cancer: Where do I go from here?
Prostate Cancer | Last Active: Jan 31, 2023 | Replies (67)Comment receiving replies
@dsingstock : I am sorry to hear of your diagnosis. My first advice is to stay positive and be patient (I know how hard that is). Here is my story as an example. In February 2019 I was diagnosed with metastatic prostate cancer. PSA was 541. I had cancer in my spine, some on the sternum and ribs. I started on hormone therapy using bicalutimide and added Eligard a month later (I get a shot every six months). I had 44 radiation treatments that summer. PSA dropped but started to rise again so we went to Enzalutimide. We added radium223 treatments before going to docetaxel. My PSA dropped again but now has started to rise again so I just started back on Enzalutimide to see if we can bring the PSA down again.
The take away from this is there are many treatment options available to you. Talk to your care team (primary care provider, urologist and oncologist) to develop a treatment plan. Be patient and continue to do those things that give you enjoyment. I find prayer to be helpful. As scary as the initial diagnosis is, there is time for successful treatment to bring the cancer under control. I have been at it for 3.5 + years. Stay positive.
Good luck on this difficult journey.
Replies to "@dsingstock : I am sorry to hear of your diagnosis. My first advice is to stay..."
4 years after 40 radiation treatment C appeared in my L2 lumbar as PSA went from <.01 to 26 Intense radiation on L2 took out 1 inch C Back on Zolodex as I am Stage 4 metastatic but castrate sensitive so PSA now 1.2 but yesterday test was 4.22 Should I be concerned? Just turned 78 Feel great
Enzalutamide waved off until if and when needed
Testosterone feeds pc Forget sex If needed you have 10 fingers and a tongue to please partner
Google St Rita saint of the impossible Her intercession has aided me amazingly I am castate sensitive because of her prayers to JESUS Oncologists had written me off and wanted chemo enzalutamide 2 years ago
I have it also ribs,sternum,scapula,did hormone therapy was working great psa .04 week after blood work,had a pain in my back turned out to be a new spot of cancer on my lumbar 9th rib put me on chemo had 5 cycles just started Xofigo radiation treatment today don’t know what to expect will see digger
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Thank you for sharing this wealth of information. Sounds like you have been to hell and back and still maintain a positive attitude. That is wonderful and I compliment you for that. My last psa was 12.2 and rising about 1.5 per month. I am told it is non curable stage 4 and metastasized in lower right ribs. Also like with you it can be controlled with the right medication. This will happen in November when I have appointments with both Urologist and Medical Oncologist. You hit the nail on the head about staying positive. Prayers help too. I need to stay strong as I am the care giver for my other half with vascular dementia. Thank you so very much for your come back . That I really appreciate, especially the meds. Take care and God bless.