Neurosarcoidosis

<p>I am in hopes of gaining infomation on the treatment of neurosarcoidosis and chatting with anyone who is now being treated for this disorder.</p>

I have Neurosarcoid and I have been treated with predisone, and remecade! I've had Neurosarcoid for 8 yrs. Now. Sending prayers to you!!!

Welcome to Connect @ddade19. I hope @brittneyj025 will return to join you here. It has been a while since she posted.

In the meantime, we would like to get to know a bit more about you. I'm not that familiar with neurosarcoidosis. What were the symptoms or circumstances that led to your diagnosis? And how are you doing now?

I have heard of this before but actually have just Sarcoidosis of the lungs. Its rather annoying with the constant cough. I will keep you in my prayers.

Thank you so much!

My husband is being treated this week end in a hospital setting. Mostly steroids, we knew he had sarcoidosis. But now they told us he has this too

My husband has sarcoidosis of the lungs skin and now has traveled to his brain. Neurosarcoidosis, currently in the hospital beung treated, he has a low spinal fluid preasure , the spinal tap took a long time due to some type of blockage

What can we expect from nuerosarcoid.

I have neurosarcoid and been treated with both predisone and remecade too. I have also had it for 8 yrs. Are u still on predisone if so how many mg? How dis the remecadr work for you?

Sending prayers to ur husband, you, & ur family