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Supplemental Oxygen

MAC & Bronchiectasis | Last Active: Dec 23, 2022 | Replies (9)

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@sueinmn

@melissa08 I am sorry to hear that stopping the antibiotics wasn't enough to help Bruce feel better. I have not been on supplemental O2, but there are some here like @windwalker (Teri) who have had the experience. Also, we just lost a dear family member, from another disease, who was able to continue participating in life by using oxygen as needed. Without it, she was far stuck in her recliner, and much less alert.

We used to make my husband's best friend, who had COPD, put on his oxygen was 91-92% because we all knew a crash was coming. Besides, his conversations stopped making sense at that level - his brain wasn't getting enough oxygen.

I will tell you that when my O2 is below 93%, I have a very hard time moving around. At 89-90%, I am sure Bruce's entire body is feeling the effects. When added to the damage in his lungs, and his deconditioning from being ill for so long, the inability to get around is not unusual.

Have you explained to the doctor that Bruce cannot even come in for necessary care in his current state? You might need to be the squeaky wheel to get help for him. I know you are his fabulous advocate and caregiver, so you can do it!

Let me know if you are able to get him the oxygen order, and whether it helps.
Sue

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Replies to "@melissa08 I am sorry to hear that stopping the antibiotics wasn't enough to help Bruce feel..."

Thanks for your note, Sue.
It is, as usual, extremely helpful and informative.
It does sound like supplemental oxygen would benefit Bruce, if we can get it for him.
His ID/pulmonologist is supportive and understands that the breathing issues are crippling.
The next steps seem to be getting insurance approval. Fingers crossed.
Will keep you posted.
Our MAC journey has had many bumps, twists and turns and is certainly not for the faint of heart! 🤗
Melissa