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frayfl (@frayfl)

Post kidney transplant, high prograf, acne like sores

Transplants | Last Active: Aug 31 5:05am | Replies (10)

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@frayfl

Prograf level dropped from 8.8 to 6.8. Assume neph will decrease prograf to 4 mg am and pm. creatine was 84, the lowest level since transplant.

I want my prograf level to be 5 or below as it has been for years.

Almost a week since dermatologist prescribed 30 days of doxycycline and a different topical crime. The sores seem to be slowly clearing up, ready for everything transplant related to get back to normal.

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Replies to "Prograf level dropped from 8.8 to 6.8. Assume neph will decrease prograf to 4 mg am..."

Hi @frayfl 😊
I am a two year post kidney transplant. I am taking Tacronlimis (blood range 6 to 8) and Cellcept 500mg bid. Do you take Cellcept (MMF), Myfortic or another med in addition to your Prograf? When was your Prograf target blood level lowered to 5? I am hoping to have my range level lowered soon.
Many thanks for sharing your experience. It's very helpful to hear from successful transplant patients!