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Tracheotomy after Larynx cancer

Posted by stephanie101 @stephanie101, Aug 18, 2022

I need help and bigger advise. My husband went through Radiation for his Larynx Cancer and developed Necrosis on his (pre cancer) left side neck area. He has been in a Trach since 06/06/22 the Necrosis has healed. The ENT claims his airway is not open enough to remove the Trach. and only by a millimeters he says! This is now affecting my husbands well being......I want a second opinion and how many mm. does he need for his airway. BTW he has stage 1 COPD but was breathing fine before this all happened. Please help with your knowledge or advise.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 25, 2022
In reply to @stephanie101 "his Necrosis has healed and he can talk when he covers his Trach hole. So his..." + (show)
@stephanie101

his Necrosis has healed and he can talk when he covers his Trach hole. So his vocals are good and have been. He will be doing more therapy on his Edema in his neck which we were dealing with before all of this. The Trach happened because of the necrosis and he could not breathe is why it was an emergency placement. And I am searching for a second opinion and hopefully through this Mayo Clinic. To even try to remove it, see how he does on his own.

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Hi Stephanie, I noticed that you're interested in seeking a second opinion at Mayo Clinic. I'm not sure if you've already done that already or not. If not, here's more information on how:
http://mayocl.in/1mtmR63

He can self refer or get his doctor to submit a physician referral. Let me know if you have any questions.

How are you doing today?

REPLY
1 reply
stephanie101 | @stephanie101 | Aug 26, 2022
In reply to @colleenyoung "Hi Stephanie, I noticed that you're interested in seeking a second opinion at Mayo Clinic. I'm..." + (show)
@colleenyoung

Hi Stephanie, I noticed that you're interested in seeking a second opinion at Mayo Clinic. I'm not sure if you've already done that already or not. If not, here's more information on how:
http://mayocl.in/1mtmR63

He can self refer or get his doctor to submit a physician referral. Let me know if you have any questions.

How are you doing today?

Jump to this post

We are still trying to get there. He ended up in ER Wed. they did tests. found nothing. He is having issues breathing because of his Edema in his neck and now hurts to swallow and he feels like he is aspirating. ENT doesn't think so ER weighed it out with X-rays. Guess we just keep trying to move forward. I do have a second opinion ENT set up for next week. I did contact Mayo Clinic but it is too far for us to travel right now.

REPLY
jeffk | @jeffk | Oct 9, 2022

Your husband should be able to cap his trach for 24 to 48 hours. He has to demonstrate he can breathe without it! I went 48 hours before mine was removed.

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