← Return to I would like insight from others who care for someone with lewy body

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@kathryn04

the reason we started going to the dr's in the first place was breathing issues, personality changes, lack of empathy and extreme fatigue. Then I began noticing small details with his memory, rigitity in his torso and neck and shuffling gait. He doens't fall and hasnt and has no tremors. Just a totally different person that what he was and now he hums or make noises all the time ( even at sleep) and he isn't aware of it . HIs memory is really bad; long term is fine, short term is awful plus now he has developed obsession w/ lottery tickets too. Here is a guy who never spent money and now I have to hide money and credit cards cause it is like he lost his filter in making good decisilons. He is on levadopa which has helped the rigidity in his torso and is on exelon and namenda but there isn't any difference at all. His sleep patterns are bad too- even though he is on serequel to help him sleep he is up a few times a night and is usually up at 500 to start his day. It is just really frustrating cause he doesnt fit into any one category and doens't have a lot of the main symptoms that he should have ( like hallunications for the DLB) but no dr can agree so I am looking to help . Plus his breathing still sucks and no one can figure out why... his pulmpnary work outs came out clean....So here I am still searching for answers...

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