Left ventricular diastolic dysfunction with preserved EF

I am a doc tot by profession and also was diagnosed with a sudden LVF and type 2 diabetes I can relate to what you are feeling being a medical professional yourself in my case both the developments were sudden I was as fit as one can be before 19 of April got an infection and then it was down hill from there while you wait for your appointment my advice to you is that you need to restrict your daily fluid intake it should be from 1 to 1.5 litres daily it includes all beverages including thin soups continue with lasix if it suits you but you need to have your potassium ions checked. because of the diuretic as for site where you can find answer you can contact mayo clinic mentor Teresa she will definitely come up with answers all the best

Sorry it’s a doctor and please. Cut down on your sodium intake

Hello @bluegiraffe,

Your frustration is very understandable. It appears as though you have had a variety of serious health issues and I can certainly understand you wanting to understand them better and have a handle on what is being done.

As you may know already, Mayo Connect is a patient-to-patient support group. Therefore, we can't interpret medical test results or advise, but we can share our experiences with each other. As a patient myself who has had three surgeries for rare cancer, neuroendocrine tumors, as well as a moderate leakage of the aortic valve with diastolic dysfunction I can certainly relate to how you want answers to your questions. I also understand that you would like them sooner rather than later. It all makes sense to me.

I can only relate to you how I navigate the health care system and perhaps my ideas with help you. First of all, I tend to use the patient portal to follow up on test results. If I have questions about those results and I don't have a doctor's appointment in the near future, I will use the patient portal to ask the doctor questions or ask him to explain more about the test result. I have found that either the doctor (or most likely his PA or RN) will get back to me with the answers within 48 to 72 hours. Also, there is a good website that explains different blood tests and their normal ranges which you might find helpful. Here is the link to that website, https://www.testing.com/tests/.

Another thing that might be helpful is to use reliable websites that specialize in your disorder. At one time. I was thinking that I might have to have a heart valve replaced, so I went to the American Heart Association's website, https://www.heart.org/, and did some reading. I have also used the American Cancer Society website, https://www.cancer.org/, to obtain information. On
each of these websites there is a toll-free phone number and there are usually volunteers who man the phones for these organizations and they can either help answer your questions or lead you to the answers and/or refer you to specialists.

Having multiple, serious health issues is very worrisome and we all become concerned when we are faced with something new. It is a good thing to keep educating yourself as well as advocating for yourself.

You mentioned that you had major surgery last month. How are you doing now?

I understand your frustration. With my primary care I feel like I am doing the thinking for them, reading my test results with my computer in front of me and my iPad by my side for looking up specific words or phrases in my report. I read Medscape and have learned things about vaccinations and my conditions not brought up by my doctor. At Mayo I get a complete report on my test results and what they mean. Now to your question: I use Google Scholar. There I find studies about my conditions, which usually include a brief summary of the condition and prognosis. The treatments are covered by the studies. When I travel internationally I often get people thinking I am in the medical field. I have learned a lot from my Mayo docs and the reading I have done as outlined above. You might think about bringing someone with you to your appointments. I hope you find good answers here. Please post an update here because we care.