Connect
← Return to What chemo did you have with stage 4 pancreatic cancer?
Discussion
What chemo did you have with stage 4 pancreatic cancer?
Pancreatic Cancer | Last Active: Jun 26, 2022 | Replies (15)Comment receiving replies
Hello Beachdog, thanks for all the information! I am at the end of the last treatment and hardly normal feeling but tomorrow I get a second dose. I think I just forgot how bad the folfirinox treatment was. Because people have said this is not as bad. I have heard that these treatment stop working as well with time. Your advise is good. I have already wondered if side effects are worth it but will have to see if it buys more time. My oncologist said if it stops helping we will switch. It just robs you of feeling like you can do much of anything. I had bad headaches raw mouth and lips, and just worse fatigue ever. Did your wife switch to another treatment after this chemo? thanks for your time in answering it helps me to know more about what other's have experienced. Thanks Sasha
Replies to "Hello Beachdog, thanks for all the information! I am at the end of the last treatment..."
Connect
My wife has been on onivyde/5fu since January. Every other week. First 6 treatments were getting excellent results, no new mets, no growth in suspect sites and huge drops in CA19-9 every treatment. But the side effects kept her bedridden from treatment to treatment and after the 6th treatment she took a 6 week break to recuperate. The CA19-9 shot up while she was out of treatment. She's had 4 treatments since resuming and the CA19-9 decreases haven't been substantial. She'll have another scan in 2 weeks to see if the after-break treatments are keeping the mets at bay despite the discouraging CA19-9 readings. Elsewhere I've written that the next possible plan might be for a clinical trial which is not specifically for pancan but addresses a mutation that her tumor expresses.