Post-operative Gastroparesis

Posted by ken82 @ken82, Jul 16, 2019

I have Gastroparesis .. the post operative type.. where some of the nerves that surround the stomach were damaged and my stomach is slow to empty.

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my daughter began to develop the above-referenced symptoms about three months post bariatric by-pass surgery (that was one year ago). It has progressed to the point that she has almost daily nausea and this week she had abdominal pain for four consecutive days. It has still not subsided. I am now wondering if she has increased scar tissue. I would welcome any comments from people who have had similar symptoms. Thank you
Rose Marie

REPLY
@fourof5zs

It sounds as though you have more than gastroparesis. The foamy mucosa usually comes from other problems like silent reflux or swallowing problems like achalasia or Barrett's esophagus. With gastroparesis you need a lower fiber diet and avoid fibrous fruits and vegetables... like the stems of broccoli or celery and peels of fruits. Seeds of cooked tomatoes and summer squash can cause problems too.. so scoop them out before cooking them. You should avoid raw foods. Eat soft cooked easily digestible fruits and veggies.. canned fruit is fine.. and eat tender meats. You can use your device's browser and search for easily digestible foods.

Eat small meals... 5 or 6. You will never feel hungry this way so you have to schedule when and what you will eat. There are many apps than can help you know how many calories you need to gain and maintain weight and keep up with what you eat and your progress. These apps make for good food diaries and can help you figure out things that make your symptoms worse. I have trouble maintaining weight and have to eat some sweets and fatty foods to gain, but with no gallbladder this is difficult for me. If I could only drink those protein drinks... they make me nauseous.

ZeeGee

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Are there any trials happening at Mayo for endoscopy procedure GPOEM for Gastroparesis? I under that there are promising results.
I have suffered for 3 years.
I do all the message and exercises to strengthen my stomach wall. I follow the diet.
I get better and then I get such cramps for days and am just miserable. I really want to get into a trial at some hospital for the G POEM.

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@rosexxxx

my daughter began to develop the above-referenced symptoms about three months post bariatric by-pass surgery (that was one year ago). It has progressed to the point that she has almost daily nausea and this week she had abdominal pain for four consecutive days. It has still not subsided. I am now wondering if she has increased scar tissue. I would welcome any comments from people who have had similar symptoms. Thank you
Rose Marie

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Hi @rosexxxx,
I definitely feel for your daughter. Speaking from experience it is very painful and frustrating when you don't have a clear answer. My pain was medication induced. All the things I was taking after my bypass were cause ulcers in the bypassed portion of my stomach. I vomited every day and had trouble staying hydrated.
Is your daughter currently taking any medication?

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@amandaa

Hi @rosexxxx,
I definitely feel for your daughter. Speaking from experience it is very painful and frustrating when you don't have a clear answer. My pain was medication induced. All the things I was taking after my bypass were cause ulcers in the bypassed portion of my stomach. I vomited every day and had trouble staying hydrated.
Is your daughter currently taking any medication?

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Hi Amanda, and I feel for all that you have gone through. I hope that things have cleared up for you. Yes my daughter is taking antidepressants and medication for severe abdominal pain. The frustrating thing about these disorders is that the symptoms can cause depression and the depression can cause the symptoms. Her bariatric surgeon said he "thought" he saw a shadow on her small intestine near the stomach but no scaring. If her vagus nerve was damaged it would cause all these problems. she only vomited three times in the last few months but the problem is the daily nausea, severe abdominal cramps and slow motility . Also occasional headaches. She is trying to make an appointment at stanford clinic for further diagnosis. There is always the vagus nerve stimulator but if you have/had ulcers that would not be applicable. i really appreciate your responding and your courtesy. Rose Marie

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@guderianj

I will say after reading everyone journeys my husbands journey with paresis has been very well managed. So I thought I would list the things I do for him that keep him out of the ER for the most part.

Food:
nothing that produces gas, (broccoli, cauliflower, beans, etc.) Nothing that has any strings like asparagus, or anything that even blended is thick.

Nothing served fresh, everything is peeled, cooked, then blended into a sauce for a meat. If it has a spinach in it he only eats it every two to three days so that things dont get compacted and form a bezoar (a no body wants that).
no whole grains at all or fiber anything. No digestive aids, etc.
he tolerates meats well, and dairy but i also limit high dairy fat meals to once of twice a week.
He also cant have chewy candies, nuts, seeds, items such as this tend to bind.

body wise:
I can tell his food is not digesting well enough very early if his breath gets very bad. He then stops eating for about 12 hours and switches to just water. Then he has something very easy to digest for dinner like taco bell. Something with no nutritional value, lol.

When he has stomach pain the best thing to do is gently walk, dont eat, drink water. Until you start to go again.
My husband also doesn't have a colon which complicates him further because his internal pouch can have issues if his paresis has issues. So we are VERY careful with paresis but it works, we have only had to have his stomach pumped once and that is when he was diagnosed.

I hope this helps people. He is a healthy weight and all blood panels are good for vitamin levels etc.

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I just want to compliment you for your discipline and confidence in your plan. Have you figured all this out yourself or with guidance? Some of it seems to be creative. Again congratulations on your plan and for sharing.

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@brendaharvey

Are there any trials happening at Mayo for endoscopy procedure GPOEM for Gastroparesis? I under that there are promising results.
I have suffered for 3 years.
I do all the message and exercises to strengthen my stomach wall. I follow the diet.
I get better and then I get such cramps for days and am just miserable. I really want to get into a trial at some hospital for the G POEM.

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Brenda, yes Mayo Clinic is studying the use of gastric per-oral endoscopic myotomy (G-POEM). Here is the abstract of a recent study.
- Gastric per-oral endoscopic myotomy (G-POEM) for the treatment of gastric sleeve stenosis: A feasibility and safety study https://mayoclinic.pure.elsevier.com/en/publications/gastric-per-oral-endoscopic-myotomy-g-poem-for-the-treatment-of-g-2

You can contact Mayo Clinic Clinical Trials to find out more about active and upcoming trials.
Phone: 800-664-4542 (toll-free)
https://www.mayo.edu/research/clinical-trials

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@colleenyoung

Brenda, yes Mayo Clinic is studying the use of gastric per-oral endoscopic myotomy (G-POEM). Here is the abstract of a recent study.
- Gastric per-oral endoscopic myotomy (G-POEM) for the treatment of gastric sleeve stenosis: A feasibility and safety study https://mayoclinic.pure.elsevier.com/en/publications/gastric-per-oral-endoscopic-myotomy-g-poem-for-the-treatment-of-g-2

You can contact Mayo Clinic Clinical Trials to find out more about active and upcoming trials.
Phone: 800-664-4542 (toll-free)
https://www.mayo.edu/research/clinical-trials

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Thank you so much!!
I really want to get into a trial if possible. Regards, Brenda

REPLY
@fourof5zs

It sounds as though you have more than gastroparesis. The foamy mucosa usually comes from other problems like silent reflux or swallowing problems like achalasia or Barrett's esophagus. With gastroparesis you need a lower fiber diet and avoid fibrous fruits and vegetables... like the stems of broccoli or celery and peels of fruits. Seeds of cooked tomatoes and summer squash can cause problems too.. so scoop them out before cooking them. You should avoid raw foods. Eat soft cooked easily digestible fruits and veggies.. canned fruit is fine.. and eat tender meats. You can use your device's browser and search for easily digestible foods.

Eat small meals... 5 or 6. You will never feel hungry this way so you have to schedule when and what you will eat. There are many apps than can help you know how many calories you need to gain and maintain weight and keep up with what you eat and your progress. These apps make for good food diaries and can help you figure out things that make your symptoms worse. I have trouble maintaining weight and have to eat some sweets and fatty foods to gain, but with no gallbladder this is difficult for me. If I could only drink those protein drinks... they make me nauseous.

ZeeGee

Jump to this post

Besides the small frequent meals I also walk after eating…..I get bloated just drinking my coffee in the morning….I walk even when I hurt because it gives me relief either by passing gas or gets the digestion moving….Finding out what I could eat was very helpful, and sometimes it doesn’t matter what I ate, but the quantity of my safe foods…. 🙏❤️

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I'm now 85.. nothing has changed in my ability to eat the way I have described for now 7 years.. in the summer I enjoy a frozen Mango Margarita..with coarse sugar on the rim.. done like a smoothie.. in the blender

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That’s what we think happened to me…..it’s been a process in finding answers with a lot of reading & with trial & errors on what to eat, quantities (very small amounts & lots of walking after eating) …. Can’t wear anything tight….I wear sizes two times bigger on the bottoms for Comfort….wearing elastic waist too! Don’t like the look, but Comfort is more important! I wear a lot of comfort clothes around the home & get out of my church clothes as fast as I can when I get home….I had two hiatal hernia surgeries & it was the last one that he tied my stomach around the top & attached it to my diaphragm!!!! 🙏❤️

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