anyone have arnold chiari malformation

Posted by shar3n @shar3n, Feb 14, 2012

arnold chiari malformation

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Hi Shar3n -
There is some information available on mayoclinic.org - mainly just specific to chiari malformation but arnold chiari malformation is mentioned several times.
http://www.mayoclinic.org/chiari-malformation/

Also, if you are interested in seeing a Mayo Clinic physician you can click on the "request an appointment" button on the upper right hand corner of your screen.

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I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

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I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

REPLY

I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

REPLY

I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

REPLY

I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

REPLY

I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

REPLY

I have a chiari and I have some strange things happening to me, that I think might be related to it. I'd like to ask others if they experience similiar to mine. One very disturbing incident was just as I strained to use the bathroom, the pressure in my head was unreal...I lost all control (my equilibrium) I was almost incapacitated for 2 hrs. My husband called 911 & they took me to the hospital, where I was had a ct scan to rule out stroke, an ekg, and blood work. Nothing was revealed by the test & I told the er dr. about having a chiari; so he said that might have caused it. Also I have a constant vibration & souund in my head. Does any of this sound familiar to you?

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do not get it operatedon if youcan help it,, they did to me,, and two weeks later i was in the hospital with a temp of 105,, menigitis,, spinal fluid leakingout of my neck,, and i;m in worse shape then ever,, do not get it operated onunless you cant take it anymore,, make sure all test are donw,, it is not a easy operation,, rememebr,, they are operateing on teh brain,,

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I have chiari type 1 with large syrinx I will be having surgery on April 24 at Rochester mayo clinic I've dealt with migraines most of my life if I didn't have the syrinx I wouldn't need the operation

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