← Return to Fibromuscular dysplasia (FMD)

Discussion

Fibromuscular dysplasia (FMD)

Heart & Blood Health | Last Active: Sep 11, 2019 | Replies (59)

Comment receiving replies
@iagrrl

Hi Kari,
I'm doing well, thanks for asking. I had a check up in April with Dr. Houghton and had a CTA and an MRA to check my carotids, renals and mesenteric arteries as those are the ones that are affected by my FMD. I take 5 mg Lisinopril and a baby aspirin every day so I am one of the very, very lucky ones. I received a letter about being included in the Registry from Dr. Shields, so I take that as positive. When I was there in April I did complain to Dr. Houghton that Mayo was not part of the Registry and pointed out that their competition was included in the the Registry so I thought Mayo should be more proactive there. He said he would talk to Dr. Shields, so maybe that is partly why Dr. Shields sent out these letters to the FMD patients. Who knows? Anyway, all is well and I hope it stays that way! How are you doing??

Jump to this post


Replies to "Hi Kari, I'm doing well, thanks for asking. I had a check up in April with..."

Awesome news about being included in the registry. Mayo was part of the patient registry, for many years. I am sure there is a valid reason they opted out. I am doing ok.... gearing up for my yearly MRI/MRA this fall. Seems each time they find something new, so it always makes me a bit anxious. Last time they found a AVM that I had not had in any previous MRI/MRA's. I have not researched FMD and AVM's much.