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sdavisali (@sdavisali)

Autonomic Dysfunction or POTS in teens. Help!

About Kids & Teens | Last Active: Jul 15, 2017 | Replies (10)

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@kds1236

I have a 17 year old daughter that has just recently been diagnosed with Autonomic Dysfunction. It has been a long road getting to this diagnosis. We were told that everything was in her head, she was faking , or that this was psychological. Finally a diagnosis after 1 year of tests clinics and hospitals. My daughter missed half of her Junior year and has had to give up everything that ever meant anything to her. Her friends pretty much abandoned her and she if at home alone most of the time. There is no cure but we have been given some strategies to use. The biggest issue right now is dealing with her immense depression and feelings of worthlessness. This was at one time a very talented young lady full of energy, creative, musical. To see her wither to this is unbearable to her and me. I am at wits end and feel like I do not have the tools to help her. No matter what I do it does not seem to be helpful. I just need someone to talk this through I feel so alone and when feel like everyone is sick of hearing about it. I would do anything to make her feel better. Any suggestions would be so helpful

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Replies to "I have a 17 year old daughter that has just recently been diagnosed with Autonomic Dysfunction...."

I realize your post is a couple of years old, but we are desperate for answers. The description of your daughter mirrors the experience my 14 year old granddaughter is having currently. She was seen by Dr Fisher at Mayo Clinic 6 months ago but symptoms are very slow to diminish. My granddaughter is an honors student and is involved in various activities including band, piano, hockey, scholastic competitions and student council. She tries to stay engaged in her life and is currently seeing a therapist to deal with the depression. You are right when you say friends and family don't understand. My daughter and granddaughter feel very alone in this struggle. I would appreciate any information on how your daughter is coping now and any suggestions to help us. Thank you.

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