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sdavisali (@sdavisali)

Autonomic Dysfunction or POTS in teens. Help!

About Kids & Teens | Last Active: Jul 15, 2017 | Replies (10)

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@kchartwick

Hello Susan, I’m Kim and my daughter was diagnosed with both types of thyroidism a year ago in March. We went to the Mayo Clinic in Minnesota at the end of Sept last year. We were signed up to attend the Pain rehab clinic until our isurance denied it 2 times. My daughter also has an intense chronic pain on the left side of her head. Other than the thyroid diagnois nothing has been done to help with the pain. We see numerous doctors and have been at this for over two years now. I’m new on this web site and am looking for other parents who are dealing with many doctors and not many answers. Hope your daughter is doing better and would love to chat with you on here sometime.

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Replies to "Hello Susan, I'm Kim and my daughter was diagnosed with both types of thyroidism a year..."

I am an 18 year old female and I have CFS and IBS but the treatment I have undergone so far has only scratched the surface. I think I have POTS but not many doctors have taken me seriously. I live near cincinnati so I don’t have immediate access to specialists at the Cleveland or Mayo Clinic. Any advice?

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