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sdavisali (@sdavisali)

Autonomic Dysfunction or POTS in teens. Help!

About Kids & Teens | Last Active: Jul 15, 2017 | Replies (10)

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@charlotteo

I would be interested in talking with you. My granddaughter age 14 has gone from a bright athletic girl to sleeping 18 hrs out of 24, nausea after eating, hungry all the time, missing school and exhausted. Have you received any answers yet?

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Replies to "I would be interested in talking with you. My granddaughter age 14 has gone from a..."

We do have some answers now – not a cure, but help and answers. My daughter attended the PRC program at Mayo. It”s 17 days of treatment. Amazing program!!! Has your granddaughter been tested for POTS? Google ‘Dr. Fischer and POTS” to see a video on YouTube put out by Dr. Fischer at Mayo. He’s the expert. Contact me anytime!!!

Hello I am also named Kim. My son has POTS and we are still struggling trying to manage the symptoms or develop somewhat of a new routine. he is in bed the majority of the time. I am seeing the Dr. today to get a referal to the Pain Program. I do keep hearing how much it helps! Beyond increased salt, fluid and excercise… any other ideas?

I’m 15 years old and been dealing with very similar things I believe I have POTS and have been goin to Riley Children’s Hospital but I just need some answers I am seriously considering traveling to Minnesota to Mayo Clinic

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