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cahnny (@cahnny)

Eye evisceration

Eye Conditions | Last Active: May 10 11:07am | Replies (29)

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Renyt, I'm sorry, I had not seen this comment before I responded above. In 2010, I was threatened with enucleation. The discussion was about the types of prostheses used back then, and I didn't like my options. It wasn't a glassy eye, but some other kind of material. I really don't know that procedure. This time, I saw a surgeon first, who sent me to an ocularist. AS soon as the ocularist looked at me, he said, "have you considered an evisceration?" I actually had to do something, and I thought that my best protection and aesthetic was the evisceration with a cosmetic prosthetic after it healed. I let it heal for 4 months. I sometimes wore a patch in public, but as someone with tons of scars and deformities as a result of my Juvenile Arthritis since age 2, I no longer care (that much) about how others perceive me. The prosthesis was for me. But I can't put it in by myself because of the limitations in my hands and elbows. I am legally blind so can't drive, and my cervical spine is fused so putting drops in requires me to lie down. My husband helps me a lot!

So, here's what I think. Learn what you can about the differences between evisceration and enucleation, and maybe Amanda can help with that. I don't know what artificial eyes are like for enucleations, but they could be similar. Mine is a polished polymer kind of thing, custom crafted to match exactly with my other eye. BTW, I hear some folks have fun with theirs and put little images of their pets or sports teams inside the pupil! Weird but fun! Also, you will need help for either surgery with getting there and going back home. So, maybe you can contact someone who would be willing to come help you for a time. Or maybe there are resources in the community or with your insurance to get you through this? You might want to talk to the surgeon about this.

Your eye will look very different after surgery. It will need time to heal. It will be painful like a headache for a couple of days or so. I know you've been through a lot and dread going through anymore. I know this because I've had over 40 surgeries in my 58 years. I don't know how much more I can take either. Be gentle and kind to yourself. Know your options and the consequences. Ask good questions of doctors, the supports you find here, and yourself. Can you keep your current eye? Can you simply wear a patch after the surgery?

Here's the other thing I can tell about you: you are very strong. You have endured much already, and none of it's fair, but you have seen your own resilience through your own experiences and ability to survive. Again, I wish you all the best and I will happily try to answer any other questions. I need to go back and listen to your last comment now and see if I missed anything, so sorry if I did.

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Replies to "Renyt, I'm sorry, I had not seen this comment before I responded above. In 2010, I..."

Your article was most helpful. Just knowing what to expect helps. You healed for 4 months before continuing with the replacement prosthetic – was this due to your other health issues or is it best to heal for a long period first? I am concerned about the surgeon doing the surgery. I have read a lot about surgeons who are specialized in Ophthalmology Plastic and Reconstructive surgery. I did not want just "any" eye surgeon doing the surgery – especially if I have to have an enucleation. I searched for surgeons who had a 5 star rating and had acquired a Fellowship medical designation. Since I live near Kansas City, MO I located two within the Fellowship medical doctor's listing. I decided on the one I have an appt with in July, 2022. Probably this is the reason I have to wait 3 months for my appointment. Hopefully, I have chosen well! The physician I am currently with, his specialty is corneal transplants. I was referred to him by another ophthalmologist when my eye condition was deteriorating and I was becoming concerned what the problems were. This doctor immediately found the problem and began treatment. He is trying to prevent any infection from occurring. I have only been under the care of this doctor for 1 1/2 months. I had several questions he said he could not answer regarding evisceration and enucleation and recommended I talk to the surgeon in his medical clinic. I could not find any reports regarding the surgeon therefore I decided to get a reevaluation from the doctor I selected from my research of physicians with a Fellowship designation. Maybe I am being too concerned regarding which surgeon I go to? We lived in Minnesota many years before moving to Missouri. Three of my four eye surgeries were performed at Mayo Clinic as well as my breast cancer and my husbands colon cancer. If it wasn't for the distance where we live now I would return to Mayo for my current eye issues. We could not be more pleased with Mayo! Thank you for your message and will appreciate anything else you have to share with me. Your struggles have been much more than mine and bless you for enduring your health issues. We thank God he gives us the strength to handle the issues we face in our lives. May you have a beautiful day. Sorry for my long post. RENYT

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