I see that this is your first post with Mayo Connect and I'd like to welcome you. You certainly have some distressing symptoms and I can understand your concerns.
If you are comfortable sharing more, please share the following: What type of specialists have you seen? What sort of tests have you had for the digestive disorders (Endoscopy, etc.) Have any treatments been offered? Have you considered a second opinion from a large medical research center like a Mayo facility (Mayo has clinics in Minnesota, Florida and Arizona) or other medical schools?