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concerned mtn. mom (@concernedmtnmom)

Chronic vomiting, diarrhea, stomach pain in kids

About Kids & Teens | Last Active: Feb 7, 2019 | Replies (29)

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@tonnie325

I'm curious about everything you did for a diagnosis. I need help desperately for my son. He is now 18 and 101 lbs, diareah, vomits, constant pain cannot eat. He is deteriorating. Colonoscopys, endoscopes, blood work show nothing. Gi dr just yesterday implied its him, in his head and said see a therapist and take probiotic. I'm beside myself. I try everything this boy is suffering, underweight, fatigue, you can look at him and know he is unwell and yes very unhappy which I personally understand he gets no relief, no help. Anything information, direction you can give me I would be appreciative I am not giving up on my son, this is failure to thrive it's very very frightening and I need to get him out of any illness and help him. Thank you

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Replies to "I'm curious about everything you did for a diagnosis. I need help desperately for my son...."

Have you tried a functional doctor? I am going to call dr O on monday morning to get help with my gut issue. I attended the informational meeting last week at Vitality and I was skeptical but going from doctor to doctor agetting no where has cost me more than money. I’ve been getting progressively worse. But nothing can be found to cause my problems. Here is his mission statement:
“To educate, empower and create the opportunity to restore health for those who are ready for change."
– DR. STEVEN OSTERHOUT
Vitality in Portage Michigan
https://www.yourvitalityhc.com/

@tonnie325
Never accept being told that it’s all in the head!
Did they test for food allergies, intolerance or sensitivity? Celiac?

Hi, @tonnie325, you must never give up–docs who can't diagnose something and then call it a psych problem out of frustration are not docs you need. Some tips: This Mayo site has great information on it, so look up Clostridium difficile and see if the symptoms match his.

The cytotoxin test is the gold standard for detecting C. Difficile. I'm not sure, but all labs should be doing this protocol by now, but if they aren't, you might get a false negative. So research cytotoxin test (they measure cytotoxin A and B) and demand one because it might be C. Diff., given his symptoms. It could also be a FODMAP problem, which stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. These are simple sugars found in all kinds of natural foods and if he has an intolerance, that could make him sick in the GI tract. Celiac disease is easily tested, too.

Maybe you've tried these things, and I'm not a doctor, but getting him to Mayo would be a good call. Because he's 18 you can maybe go to more than one of the Mayo clinics (Rochester or Phoenix, not sure where else they have one). If he's that ill, it's worth getting him in if you can afford the trip. The grand rounds approach at Mayo is what saves people (multiple docs reviewing his case and discussing it). It takes time to get in, so apply today.

I know the fear and frustration you feel. You are not alone. Write me anytime here, I'll respond with any info I can share. Many moms supported me when we were in the dark woods, so here's a little candle. You can do this. I learned it helped to cry on the phone when making appointments. People want to help. Find those who can. You might have to remind them what they signed up for when they took that Hippocratic oath.

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