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concerned mtn. mom (@concernedmtnmom)

Chronic vomiting, diarrhea, stomach pain in kids

About Kids & Teens | Last Active: Feb 7, 2019 | Replies (29)

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@littledreamer

Hi,
I am sorry to hear your daughter is feeling so ill. I am 15 and I have very similar symptoms to your daughter and I also have no answers. I was diagnosed with celiac disease when I was 13 years old, but it didn’t stop the GERD, diarrhea, and tummy pain that has been plaguing me for quite some times. I got a colonscopy and an endoscopy too, but they found nothing. Eventually my GI and physician pretty much just diagnosed me with IBS (irritable bowel syndrome) and told me I would just have to deal with it. It’s been quite frustrating too because I am 5’4 but I weigh 85 pounds, so I am very thin. I guess I am still searching for answers.

So far the only thing that has given me some relief is massage therapy and yoga.

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Replies to "Hi, I am sorry to hear your daughter is feeling so ill. I am 15 and..."

HI, Little Dreamer, thanks for writing! I am sorry it took me so long to get back to you, most mostly I am sorry for your suffering. I know how hard this is for you, and I hope you will get answers from a doctor willing to go the distance. Please read my other posts on this page under Concerned Mtn. Mom. I am happy to report we got the help we needed at Mayo Clinic and my daughter’s diagnosis was Postural Orthostatic Tachycardia Syndrome and fructose malabsorption. A year ago we were told it was “just IBS” and also just “something to deal with–if she throws up, just act like nothing happened.” Well, she was throwing up every day, 10 times a day or more, and ended up in the hospital. It was a “go-away” diagnosis and one some docs will give when they can’t figure you out. Dont’ give up! Get to Mayo if you can, but in the meantime, you may want to ask your GI to test you for FODMAPs–that’s “short chain carbohydrates and monosaccharides which are poorly absorbed in the small intestine.” At Mayo my daughter did a fructose absorption test and found the source of her nausea, vomiting, and chronic abdominal pain. Restricting her diet to eliminate most fructose made a huge, wonderful difference. So it’s not all in your head, but it could be in your intestines! : )

Mostly I would encourage you to never give up. You need an advocate to push your case on any doctor who will listen. A diagnostic team is a good thing, doctors working together with open minds.

I am happy to report that with the treatment plans they gave us to handle my daughter’s two diagnoses, she is back in school and living a mostly normal life. In a month! You might also look at Gastroparesis. Today is also SMA awareness day, to raise awareness of a dangerous condition patients who lose too much weight too fast can face (Superior Mesenteric Artery). See http://en.wikipedia.org/wiki/Superior_mesenteric_artery_syndrome. this is very very rare, I am just sharing this info for the spirit of the day. I am not a doctor! just someone who knows that it’s worth it to keep looking for answers and better health. Good luck and I hope you get comfort and healing fast!!

Thank you so so so so so so so so much! I really needed someone to listen and help instead of just say, “deal with it because it’s just stress.”

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