1. < Caregivers: Dementia

Any other caregivers of Frontotemporal Degeneration out there?

Posted by LimboLady @limbolady, Aug 12, 2011

Are there any other caregivers of Frontotemporal Degeneration out there?? I would like to start a thread for support and education.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

anncgrl | @anncgrl | Apr 4, 2022
In reply to @snowbloom "Hello. I so relate with your post. My husband recently was diagnosed with FTD. I am..." + (show)
@snowbloom

Hello. I so relate with your post. My husband recently was diagnosed with FTD. I am struggling on every level. We live in a very rural area so resources for caregivers are limited and involve traveling a distance. Finding support is going to be crucial for my survival! I would be glad to listen and share with others in similar situations.

Jump to this post

I am going to get a contact point for you of people who are caregivers and then a site on facebook for people who caregive family with FTD. A great resource is also https://www.theaftd.org
.Do you have reliable internet access and where do you live? I will send further info shortly. You are not alone!

REPLY
FWW | @fwentz | Apr 4, 2022
In reply to @snowbloom "Hello. I so relate with your post. My husband recently was diagnosed with FTD. I am..." + (show)
@snowbloom

Hello. I so relate with your post. My husband recently was diagnosed with FTD. I am struggling on every level. We live in a very rural area so resources for caregivers are limited and involve traveling a distance. Finding support is going to be crucial for my survival! I would be glad to listen and share with others in similar situations.

Jump to this post

One possible resource is friends, relatives, and neighbors who say "Let me know if there is anything I can do to help." Usually they aren't only trying to be polite, they really would like to help if they could. BE READY WITH A REPLY! At your leisure, think of what they might be able to do. Could you come over once a week from 9am to noon to be a companion with my spouse while I can do grocery shopping or other errands? If I can count on that for example every Wednesday, I can schedule my medical, dental, and counseling appointments for that time. Or you might think of other things they could do like taking your spouse out for a hair cut. And maybe you don't need to wait for them to ask again if they've offered to help before; give them a call!

REPLY
View MoreView Less
Please sign in or register to post a reply.