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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Dec 18, 2023 | Replies (273)

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@loribmt

Good morning, @lag630 I know from experience this is an unsettled time for you and your husband. Not the way you’d expected to be enjoying retirement, right? My husband and I went through the same scenario. Life was going along just fine and then, out of the blue, I developed AML (acute myeloid leukemia) 3 years ago. As my only option for a future I required an allogenic (unrelated donor) bone marrow transplant which has, indeed, been a life saver! I see your husband will also require a new immune system to put things right. I will admit it’s no walk on the beach but it is doable and one heck of an experience! And a means to giving your husband a second chance at life. ☺️

It is a complex undertaking so it’s best to have this procedure and follow ups done at a hospital/clinic which specializes in bone marrow transplants.
Are you living near a large hospital that specializes in this procedure?

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Replies to "Good morning, @lag630 I know from experience this is an unsettled time for you and your..."

Good Morning! It’s nice to have someone who has gone through this. Yes, we will have to move to Rochester, MN and are getting care at Mayo Clinic. Fortunately we are only a couple hours away, however will have to move there for the daily check ups post BMT for at least 100 days.