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Recently diagnosed with Small Fiber Neuropathy - so many questions
Neuropathy | Last Active: Mar 8, 2022 | Replies (78)Comment receiving replies
Good afternoon @442. Thanks for responding and welcome to Connect. Unfortunately, cold feet is one of my real challenges. I should say freezing feet because sometimes mine are freezing cold with what I call liquid ice. They don’t respond to movement because they are also numb in places……especially on the bottoms. I have them treated twice a week so that I can continue driving. Let’s put out a request from other neuropathy members to see what works for them.
Have you been diagnosed with a form of neuropathy?
Please let @422 and me @artscaping know about any tips you have for keeping your feet warm.
May you have contentment and ease,
Chris
Replies to "Good afternoon @442. Thanks for responding and welcome to Connect. Unfortunately, cold feet is one of..."
Hello, Chris and others. I was diagnosed with SFN in 2004. My neurologist at the time gave me a test which was very painful. He directed me to go to a teaching hospital. At that time, I went to Shands in Jaxsonville. Because of some sort of mixup, my neurologist didn’t send my needle results, so they gave me the test again. Needless to say, I never went back to that Doctor. Shands was no help except to put me on gabapentin and atriptalyne.
I’ve been on gabapentin since then, only increasing the dosage. Because of getting older 🙂 , I had to stop the amitatripyine.(?)
The only thing that has helped is a spinal stimulator, but I had to have it removed.
Sooo gabapentin 3600 mg a day, and still hurting, cold feet,etc.
Sorry for so long a post
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Hi. All, Has anyone been advised to stop driving by their