Welcome Steve @stevegrinstead, I see that you are new to Connect today and are trying to Connect with other members with Superficial Siderosis. I saw in one of your posts in another discussion that you mentioned your Mayo Clinic patient story on Sharing Mayo Clinic. I thought I would share a link to your story here:

A Leak in His Brain, Troubling Symptoms, and Finally an Elusive Fix
-- https://sharing.mayoclinic.org/2017/05/25/fixing-a-tiny-leak-makes-a-big-difference-for-steve-grinstead/

I would also like to welcome @jposewitz who recently joined Connect was diagnosed in 2018, had surgery at Mayo in April 2019, and started Ferriprox in September of 2019.

I'm tagging @staffordpark and @herbertli who have posted in the discussion to see if they have any questions for either of you.

@stevegrinstead and @jposewitz can you share a little more about your diagnosis and any tips or suggestions you want others to know?