Hi @hopeful33250, the first symptom it all began with was right hand weakness. Luckily, I'm still in the beginning stages so I have a good percentage of functionality still. When looking for the cause of my 'far out' neuropathy, it was discovered thru free genetic testing. Otherwise, I wouldn't have known til way later down the road, so kind of a blessing in disguise. I found a few websites and I've been doing my research, but hopeful to connect with others in that realm eventually. Thankfully, there is always research being done…