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Does a kidney transplant help the pancreas calm down?
Transplants | Last Active: Nov 29, 2021 | Replies (11)Comment receiving replies
Diagnosis EPI of the pancreas. Put on 3,000 Creon which produces enzymes so I can eat. Waiting on kidney transplant GFR is 25 highest it’s been in 3 years. Has anyone experienced Creon raising the GFR. Any helpful hints on getting the diarrhea under control. Doctors say GFR has to be under 20 consistently. UNOS rules?! Juvenile type 1 for 50 years. While waiting fir GFR to drop pancreas problems developed. My worry is while waiting it’s inevitable that my organs are working overtime to compensate. What fails next? Quality of life is wearing depends and toilets . I’m an Olympic Athlete and looking at me you would never know it. I don’t know why they don’t focus on the whole package with lab results. Thank you ! This site really helps me .
Replies to "Diagnosis EPI of the pancreas. Put on 3,000 Creon which produces enzymes so I can eat...."
@cathyherman, I am a liver/kidney recipient, and I want to say that I know how awful it is to wait, wait, wait and experience the changes in a previously healthy body. Reading that you are an athlete, gives me the belief that you are already proactive in healthy habits that will serve to your advantage when surgery might be required. Another advantage for you is that you have a potential donor.
How are you managing the waiting? What helps you to pass the time?
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P.S. I have a living donor!