@gema98 You are right to start serious looking for additional disease. One thing we are learning quickly is that the "RARE" in "rare disease" really applies more to the DIAGNOSIS of the disease than to the "existence" of the disease within a person. I have a bunch of pathogenic, or damaging diseases in my family which we had never even heard of. Several of the family are being killed by diseases supposedly rare, but are just now coming to light. In my lifetime of 81 years, I have tracked over 300 symptoms, signs, etc, of so-called RARE diseases. Truth is, humankind is just now learning to take most of them seriously. And most of them do not have approved treatments yet. Things like Walker-Warburg, and LGMD2m and Clarkson's, and blood type AOB, etc. So do keep looking. My thyroid issues started about 65 years ago, and heart about 82 years ago, etc. But I am still alive, after being informally diagnosed at the ripe old age of 10 minutes by a smart country doctor and his nurse. @oldkarl

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