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Multiple autoimmune diseases

Autoimmune Diseases | Last Active: Nov 23, 2021 | Replies (76)

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@frawlsco

thank you for responding. I will let you know what happens . I plan on setting up the appointment after the new year. I guess I see them first and then they request all the doctors files? I just hope it may be one problem which just hasn't been treated correctly. I don't know.

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Replies to "thank you for responding. I will let you know what happens . I plan on setting..."

I do not know what category to put this reply into but here goes. I have three autoimmune diseases but now I have another big problem. Besides having all my other medical issues I have hypothyroidism for about thirty years AND NOW HAVE secondary hyperparathyroidism. Talk about your ups and downs. The paperwork from Quest shows I have had this for over two years and have been complaining to the nephrologist of the symptoms and pain but was told all is fine. Soooooo naturally I went to another doctor who immediately took tests which revealed the diagnosis. This took two years of not working with this problem and has placed me in the kidney category of stage four. Which could have been prevented if the doctor would have told me so I could watch my diet and etc. so to stop this progression. I now have worse eye problems and think I have TED thyroid eye disease due to the hyperparathyroidism. Again, there are no doctors in my county who address this diagnosis. Losing more eyesight. It is now taking away the enjoyment of watching television. Not much else to live for but I do still want to live. Is there an angel out there for me?

@frawlsco I’m so glad you’re going to move ahead and make an appointment. Who are you going to make the appointment with? When you call for the appointment, ask if they want your medical records ahead of time. Then you will need to go to each doctor office and sign a release of medical information. Make sure the new doctor and the previous ones all have permission to talk with each other. Privacy rules can be a headache, but they are for our protection.
Start writing down the top things that are causing you problems. Don’t rely on your memory!
Please let me know what you learn from your appointment

Get the appointment now as it may take months to get in. If you have history with other Doctors, take a drive and sign the consent to share information. Then give the list to the Dr you made the appointment with. I never have kept copies, but with a diagnosed condition, you probably should get copies from the past few years. Don't put it off. Your PCP may also help you get the latest bloodwork labs about two weeks before the appointment. It is good to do the work in advance, so you have a better starting point. Most info is online so it is important to remember that so the Dr can access the images. BTW it has save me some unnecessarily repeated test.

@frawlsco, Wait times may be longer than typical at the moment, so I agree with @marye2 that you would be well advised to submit the request now or have your doctor make the referral.
Here is more information about requesting an appointment at Mayo Clinic http://mayocl.in/1mtmR63