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Anyone with a feeding tube, how did you get one?
Digestive Health | Last Active: Oct 19, 2021 | Replies (17)Comment receiving replies
You would think so. I can accept food but it does not stay or digest correctly. Even liquid diet causes stomach flu like symptoms. And I get only 300 cals a day on a good day. Been going on for months as I waste away. My other specialist are asking them to do it and are quite concerned, but the gastro docs just wanna try another med, which so far only makes feel worse. It is starting to get too scary to keep playing games with them.
Replies to "You would think so. I can accept food but it does not stay or digest correctly...."
I know you said you had trouble with liquids but have you tried the High Calorie Ensure? It has 355 calories and the chocolate flavor goes down well for me. A nutritionist recommended this when I was losing weight rapidly from chronic nausea. It helped stabilize the weight decline, along with some other therapies. It is worth a try while you are waiting to figure out your next step. Hang in there @gastrogirl!
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Jumping in here, out of my range of experience as a patient - but wondering if there is hope in trying this new medicine? How long until you can expect any positive results.
Is it possible that the GI is looking for the underlying cause, thus avoiding a feeding tube?