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@jakedduck1

@beccahp
By ‘Frozen Seizures’ do you mean Absence Seizures?
I was curious how your son acted during these seizures?
Does he just stare blankly as though he’s daydreaming or does he have some slight movements? Can he respond.
Has the doctor used terms like Absence, Focal, Focal Aware, Focal Impaired? Approximately how long do they last?
regarding his memory loss, is that just temporary or is it permanent? If he’s having absent seizures memory loss is usually short-term. i’m curious if he’s not having oh cool impaired/complex partial seizures primarily because of the sleep time. With epilepsy there always seems to be more questions than answers.
Take care,
Jake

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Replies to "@beccahp By ‘Frozen Seizures’ do you mean Absence Seizures? I was curious how your son acted..."

Hi Jake,
Zach's Neurologist called them Frozen Seizures and said only part of his brain was frozen or affected. Yes, he stares blankly and all his movements are frozen in place. One time, he was talking with his sister on the phone and just froze with it in front of his mouth and staring blankly while sister was trying to get his attention from the phone. She sort of figured out what had happened.
They last from as short as 3 minutes to 15 or so, I guess.
He does not respond at all during these, but is able to be led by the arm to a place to lie down. If he is already laying in the recliner, with no resistance, I can rearrange his head/arms for more comfort.
The memory of those frozen minutes do not come back to him but he can sometimes recall what was happening just before it happened.
Yes, lots more questions than answers, unfortunately. 🙁
All the best to you,
🙂 Beccahp