My Fiance was recently diagnosed with Langerhans cell Histiocytosis. We are in search of a second opinion to be sure of the diagnosis and treatment. The doctor is wanting to treat with Chemotherapy (low dose infusion, 5 straight days a week once a month for 12 months) I get the feeling that since this is a rare disorder/cancer they don't seem to know a lot about it and I want to make sure that this is the necessary treatment. This all started a year and a half ago with an itch. With that being said he has also been diagnosed with Alpha Gal from a tick bite. Apparently he had a much going on all at the same time and his bloodwork is kinda all over the place. Does anyone have any further information or experience with LCH? I will take all the input we can get.

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