I am not diagnosed with anything but I have every one of your symptoms. Burning-stinging -numbness-faciculations-everywhere. My toes cramp and my legs are always cramping. I have had MRI’s-skin biopsies and many blood tests. All unremarkable. I take 900mg gabapentin and 40 mg Nortripline. Helps with the pain but I still feel every symptom and it is always progressing . My strength is good and tests are negative- my doctors offer no more suggestions. They appear to not be particularly concerned but don’t ignore my concerns. I want my body that I recognized my whole life back. It’s just sad. I am not giving up and I want answers-in the meantime I let the doctors treat my pain best they can. I wish you answers-try to concentrate on the things they can rule out. It might be
Reassuring and help you to not be so fearful.

You sound similar to me except mine is mostly left sided plus central things (except for my tongue/ throat). Mine reacts well to steroids but that doesn’t seem to be a solution. Did you ever find some relief?

Hello, I have been on Lyrica for about a year. Terrible pain in the left side of my jaw, Pregabalin seems to be the answer for me. Currently taking 50 mg twice a day, but I was on 75 mg 3 times a day, and sleeping 18 hours a day. I have Ambesole (baby teething Medication) that I rub on my gums when ever they begin to hurt. Gives me enough relief I can eat my food, but I have not found a solution to be able to brush my teeth. Have you been placed on any stretching exercises? I have two knee replacements, 2 hip replacements, and a shoulder replacement. Occasionally I have muscle spasms, and if I begin stretching exercises the pain goes away. I do not know if this would be helpful to you, but you might check with your doctor.

I have tried almost everything for head pain stem cell therapy is expensive and their is no real studies about neuropathy and it’s effect. But look into everything , go see another neurologist get a new prospective.