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Chronic GVHD ~ Let’s talk about it!
Transplants | Last Active: Nov 15, 2022 | Replies (68)Comment receiving replies
My skin GVHD flaired up after my first Covid vaccination in January. I don’t think it’s related to sun exposure in my case, since I am rarely outside in the sun, even though I live in Arizona. I have scleroderma on my stomach, legs and arms. Hoping to start on Jakafi in two weeks. I understand that medication works well for skin GVHD most of the time. If that doesn’t work, my doctor will put me on Rezurock.
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Interesting. I had a flare up of my gvhd spinal issues after my first Covid vax. It went away thankfully. But so far the only skin issues I have is this weird rash that comes to my face if I don’t keep it moisturized.
Every time I’m in for a periodic exam with the transplant peeps, one of the first things my doctor does is to look at my back, stomach and arms, pinching them for signs of scleroderma. He also is adamant to keep covered from the sun so I didn’t know if that’s a direct cause for the scleroderma from exposure to that area or not. Thank you for sharing your experience.
I hope the Jakafi works well for you too. I have read other reports that it was a pretty successful treatment option!