Welcome back - you hit the right spot to continue your discussion.
Let's break this down...
When the bronchoscopy was done, mucus was collected and sent to be cultured. This takes 2-8 weeks to grow & determine which antibiotics your particular infection will respond to, so it will be a while before you have answers.

This confused me tested "positive for C anca a test for vasculitis but my doc said nothing showed up on my blood work" - definitely a question for the rheumatologist, and a whole different topic for consideration if vasculitis is diagnosed. May I ask if you know why this test was done?

As for the MAC infection migrating to your surgical site, if your lung problem is determined to be MAC, your pulmonologist should bring an infectious disease specialist into the discussion. In general, MAC confined to the lungs is not considered a high risk. I had two ortho surgeries on my hands while I had MAC, and the surgeon was not concerned at all that it would affect the site (and it did not.)

I am sorry you are going through this difficult waiting game - it just adds to anxiety, doesn't it? Please let me know what you learn from the rheumatologist.
In the meantime, be kind to yourself.
Sue

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