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Is anyone using Rytary?

Parkinson's Disease | Last Active: Oct 15, 2023 | Replies (82)

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@hjscheib

Teresa--

Yes, had a teleconference with my doctor this past Friday and we both agreed that I would give up Rytary after about 9-10 weeks on the drug. It is too expensive and I had multiple side affects from it - increased anxiety; overall tiredness, especially in the thighs; extreme nervousness; little strength for Rock Steady Boxing, etc. I am now returning to carbidopa/levodopa (4X per day, 2 @25-100mg), 4X per day; and one Azilect at 1.0mg. I am feeling much better - calm and getting my strength back, no overall physical tiredness. If I need to have the off-time -= toward the end of each dosing period, he will prescribe a drug like Oreanz ((spelling?) and that should help me in the near and mi-range future. Howard

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Replies to "Teresa-- Yes, had a teleconference with my doctor this past Friday and we both agreed that..."

@hjscheib Hello Howard

I am so glad to hear that you are feeling better on your new medication routine. I appreciate the update and I look forward to hearing from you in the future.

Will you post periodically and let me know how you are doing?

Glad to hear you are feeling better. I am debating on giving up on Rytary as well. Lots of side effects, and dyskinesia.