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Pre-transplant: GFR 21 Creatinine 2.2 NO Symptoms!

Transplants | Last Active: Feb 24, 2022 | Replies (31)

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@katyrae

Hi Lisa, I'm Katy, for months from Fall of 2019 to early 2020, my numbers were steady, Creatinine 4+ with a GFR of 8%. Diagnosed and put on transplant list. No symptoms from the top 5, but scheduled to prep for dialysis early 2020, until quarantine came to halt all non-essential surgeries. Then improvement followed, and now for some months my GFR is in the high teens. I could dance with joy! Well, except for this debilitating fatigue LOL, but I can't stop smiling. Except when I think about the realities of a transplant... I keep hoping for continued improvement. But my great team at Mayo takes excellent care of me, and they share hard truths with me including my need for a transplant, and have shown me why sooner is better than later. You are also pre-transplant... what are your thoughts, concerns?

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Replies to "Hi Lisa, I'm Katy, for months from Fall of 2019 to early 2020, my numbers were..."

Hi! Katy! Thank you so much for replying! Fingers crossed for you! I’m just nervous. Still early, but thinking ahead!

I had a preemptive transplant 3 years ago. My creatinine was over 2 and gfr was 13. Luckily, my daughter was a match. I was not on dialysis, but had a meeting with a representative to look at the types of home dialysis. I decided to try for a transplant. My health was good and my daughter was told that she was giving me an A1 kidney. Today I am so happy that I did it when I did, while my health was still good, except for arthritis. My recovery was so much better than it would have been, had I waited.