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teacher502 (@teacher502)

Speech, movement, sleeping with LBD..Ideas?

Caregivers: Dementia | Last Active: Aug 24, 2021 | Replies (14)

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@frankandkaren

It’s interesting that they haven’t mentioned Parkinsonism with the LBD diagnosis. These diseases go hand in hand. LBD is caused by Lewy Bodies forming in the cerebral cortex. Parkinson’s happens when Lewy Bodies occur in the motor cortex. Since there are no firewalls in the brain, it seems almost inevitable that these abnormal cells will migrate. My husband (diagnosed in 2018 with LBD) has had increasingly had more Parkinson like symptoms. Movement, bending, balance, bradykinesia and whispery speech are problems. Hallucinations have increased over time, and now he usually can’t differentiate between reality and hallucination. He just started speech therapy and while they may not be able to help him order his thoughts coherently (wishing for miracles here), they will be helping him with enunciation and volume. He also has REM sleep disorder, which is common in LBD and Parkinson’s. He has a similar history with service in Vietnam and PTSD, and sleep apnea controlled via CPAP. He still dreams violently but the CPAP does help him sleep better. All the best!

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Replies to "It’s interesting that they haven’t mentioned Parkinsonism with the LBD diagnosis. These diseases go hand in..."

Thanks for sharing all of that and bringing light to the inter workings of LBD and Parkinsonism. In my case the Parkinsonism was first outward sign of a problem so I was diagnosed with Parkinson’s. We dug deeper and found that I was having some cognitive problems before that. So after all of the neuro-cognitive testing, scans and imaging and blood tests and eliminating other things here I am LBD with Parkinsonism.

Thank you for your devotion to your husband.
You taking the time to become so familiar with the disease is a big help. You can be a great advocate and ask some of the questions the docs might overlook.

Peace
Larry H

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