@rits @sueinmn

Hi there, If it is any help to you:

I was prescribed Gentamicin (taken as a dissolving powder capsule inhalant during my daily Navage sinus rinse, along with Budesonide) by my ENT at Stanford, beginning in 2016 when I was diagnosed with Bronch + m. Abscessus in my sinuses and lungs. I was going downhill with recalcitrant pneumonia at the time.

I’ve stayed on it and by God’s Grace have been able to gain weight, get back to exercising at a high level 5x/week, teach full time, enjoy grandkids.

My ID Doc and Pulmonologist are both OK with this regimen, along with daily airway clearance Nebbing 7% sailine + vest + postural drainage + huff cough, etc.

My Gentamicin is not FDA approved, so it costs about $80 a month, but well worth it for me, since oral macrolide treatment would tear up my GI tract. It seems to keep my sinuses quiet, which seems to keep my lungs quiet.

I didn’t know it’s an Arikayce (sp?) relative, Sue, thank you! It’s been difficult for me to find much research on it, I would appreciate knowing more about Gentamicin if you can direct me?

Blessings, all.

Brenda

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