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Transplant: tongue blisters

Transplants | Last Active: Aug 22, 2021 | Replies (24)

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@loribmt

Genius is maybe a bit too big for me to handle. 😂 But I’m happy that I can help ease your fears a bit. I have a great deal of dental education behind me and now a lot of education by immersion in the world of AML and stem cell transplants.

While I didn’t have a liver or kidney transplant, we do share a few of the same medications. But our needs might differ with when to call on the transplant team. @rosemarya gave you some great information more current for your situation.

As for your tongue. It could be a little patch of what’s called geographic tongue. Sounds awful but it’s benign, harmless, usually painless and generally goes away on its own. For the first time ever, I’m dealing with that right now. Doesn’t hurt at all but I felt an area on my tongue a couple weeks ago that didn’t feel normal.
At first I thought I must have bitten the side of my tongue in my sleep but that would have hurt! LOL It’s sensitive to acidic or salty foods. It’s been 3 weeks it’s now disappearing with no help from me. So I just avoid anything that irritates my tongue, rinse my mouth well after brushing so the toothpaste doesn’t irritate my mouth. And every night after my last brushing for the day I douse my toothbrush with a little 70% alcohol to kill germs. I’ve done that since day one with Chemo/transplant.

And of course, an actual visit to your dentist is your best bet!
Have you had a dental exam since your transplant?

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Replies to "Genius is maybe a bit too big for me to handle. 😂 But I’m happy that..."

@loribmt thank you for all your excellent advice!. (I thought you may have some dental education since you are so knowledgeable). I go to the dentist every 3 months for my cleanings. Hopefully, this event will be long gone before my upcoming appointment. If not, I will definitely make an appointment. Do you think the dentist or my nephrologist would be best? If it's a side effect from Cellcept or Tac, I assume my doc would like best. But I really think it's probably a benign reaction to something I ate or I irritated my tongue. I am on the road this week and I brought a travel size toothpaste that's a different brand than my normal brand. I think maybe it irritated my tongue. Maybe it's too old and the ingredients expired. Again, thank you @loribmt and @rosemarya for always being there for me!