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Myasthenia Gravis and COVID

Autoimmune Diseases | Last Active: Oct 17, 2021 | Replies (34)

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@colleenyoung

Hi PMDwarrior, welcome. Allow me to tag fellow members @skhollandmt @rambo77 @Erinmfs @ellen307 @pdietrich @lynnes @chorba @janyce who can share their treatment experiences with Myasthenia Gravis and Rituximab infusions.

You may also be interested in this related discussion:
- Myasthenia Gravis: Share your treatment journey https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/

When do you plan to start Rituximab?

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Replies to "Hi PMDwarrior, welcome. Allow me to tag fellow members @skhollandmt @rambo77 @Erinmfs @ellen307 @pdietrich @lynnes @chorba..."

At this point I am gathering information about Rituximab and have no definite date to change treatments. I am starting monthly IVIGs again tomorrow and will continue to take CellCept. I hope my leg/arm weakness symptoms will improve again. The new Rituximab treatment option was just proposed by my doc on Monday. Concerned about side effects and want to explore Rituximab before jumping into a change.

At this time I am only taking mestinon. I won't have any further treatment plans until after I see Dr. Ruple in Sept.