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rambo77 (@rambo77)

Myasthenia Gravis and COVID

Autoimmune Diseases | Last Active: Oct 17, 2021 | Replies (34)

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@skhollandmt

I'm struggling to believe it can be myasthenia with negative blood tests and negative EMG's. But I do know not all diseases are "proven" by positive tests,are sometimes are just based on symptoms and medication result. I'm wondering if anyone else has had similiar experience? Also, what type of response do others have with mestinon. I've noticed I am very more noticeably depressed on days I don't take it but that seems weird…..because I can't find anywhere that it works on mood. It also seems that I have almost a "build up" response where I feel better after staying consistently on it for days…..but I try just to take it on days I work because there again I question the diagnosis and then feel stupid for taking a medication when I question the diagnosis. BUT on the other hand it is the ONLY thing that gets me through super busy work days!
So……….anyone out there diagnosised despite negative blood/EMG studies? And any comments on response to mestinon? Any comments of what else it could be besides myasthenia but still responds to mestinon? I'm so tired….and so tired of feeling stupid/crazy because I feel so yucky but don't have positive tests!
Thanks,
Stephanie

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Replies to "I'm struggling to believe it can be myasthenia with negative blood tests and negative EMG's. But..."

Stephanie, allow me to tag fellow members @rambo77 @Erinmfs @ellen307 @pdietrich @lynnes @chorba and others who can share more about myasthenia gravis and potential their experiences with negative blood test, response to Mestinon (Pyridostigmine).

How are you managing the fatigue?

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