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LBD Video Series: Fluctuations & Hallucinations Jul 7, 2021 | By Nick Rethemeier (@nrethemeier)Comment receiving replies
Judith, that's great that this video might help communication with your family and their acceptance of your diagnosis. I'd like to bring @larryh123 into this discussion too.
Judith, it can be really hard for those close to you to acknowledge that change will happen. In what ways do they not accept it? What helps them understand?
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My husband has a son who is an anesthesiologist. He lives 1000 miles away and sees his father for a few days once a year. During those visits it's Showtime, so he has never seen the fluctuations. He rejects the diagnosis because "the only test which confirms LBD is autopsy.". Because he is a doctor, others in the family accept his word, even though a geriatric psychiatrist, a psychology group, and a neurologist have made the LBD diagnosis and the medications being prescribed for my husband are based on the LBD diagnosis. I am the 24/7 caregiver and the children don't believe what I tell them