Reoccurring Nasal fissure that has actually deformed the nostril shape

Posted by angelak43 @angelak43, Jun 13, 2021

!!!!! Attention !!!!!! I’ve seen numerous doctors that are unsure why I have a painful nostril fissure that will not heal. It stings like a paper cut and has literally deformed the shape of my nostril because it has gone on so long undiagnosed. I’m praying this post will reach the right eyes who can lead me down the right path. My labs look normal. I do have reoccurring anal fissures too! Currently I’m doing treatment for candida in my gut. There is a perfectly round Blister in my throat that my ENT calls a tonsil cyst. The right tonsil has lightened in color. The nasal camera showed Edema a redness and pain in and around my vocal cords for many months. My ENT said that could be from LPR reflux. The doctor now recommends tonsillectomy; but that doesn’t explain why I have a strange blister/cyst in my throat that changes it’s form, and he also can’t explain the nasal fissure that will NOT heal! Someone please help!!

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@angelak43

I’m so very sorry you went through that! What could I do to avoid it becoming fistula? I have two different compound creams. I also have a cream from Emuaid. I feel really hopeless that this won’t heal and I don’t want to have rectal surgery! I just live constantly with this fissure. Should I avoid my regular exercise? What advice do you have?

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No, you sure don’t want it to become a fistula. Surgeon kept slicing it open to drain (while I was awake) and heal but finally did surgery. I can’t advice you on anal fissure care but I know you need to eat plenty of fiber, be easy on wiping and perhaps soak in tub. Stay out of chlorinated water.

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@zaa

No, you sure don’t want it to become a fistula. Surgeon kept slicing it open to drain (while I was awake) and heal but finally did surgery. I can’t advice you on anal fissure care but I know you need to eat plenty of fiber, be easy on wiping and perhaps soak in tub. Stay out of chlorinated water.

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Thank you so much! I sure hope it heals!

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Might be good idea to see a rheumatolgist

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Hi. I found your post from searching. I’ve had the exact same thing for years!! My nose is getting worse every year, completely collapsed nostril on one side. Is this the same as yours? Would love to message so we can share what we’ve found.

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@jessicaaa

Hi. I found your post from searching. I’ve had the exact same thing for years!! My nose is getting worse every year, completely collapsed nostril on one side. Is this the same as yours? Would love to message so we can share what we’ve found.

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Welcome @jessicaaa, I'm not sure if @angelak43 saw your post so I'm hoping she is able to provide an update for you. @happy2bhear posted a possibility that medications you are taking could be a problem earlier in the discussion here - https://connect.mayoclinic.org/comment/609039/.

Have you seen an ENT doctor to see if they are able to help?

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@jessicaaa

Hi. I found your post from searching. I’ve had the exact same thing for years!! My nose is getting worse every year, completely collapsed nostril on one side. Is this the same as yours? Would love to message so we can share what we’ve found.

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There are autoimmune diseases that can cause this. Have you been to a rheumatologist?

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@johnbishop

Welcome @jessicaaa, I'm not sure if @angelak43 saw your post so I'm hoping she is able to provide an update for you. @happy2bhear posted a possibility that medications you are taking could be a problem earlier in the discussion here - https://connect.mayoclinic.org/comment/609039/.

Have you seen an ENT doctor to see if they are able to help?

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Hi. I don’t take any medications so it can’t be that. I have seen an ENT, many dermatologists and even a nose plastic surgeon. They are all clueless and have no idea what’s going on.

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@siosal

There are autoimmune diseases that can cause this. Have you been to a rheumatologist?

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No I have not, what kind of auto immune diseases can cause this?

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I cant quite remember. Either a type of vasculitis or lupus i think.

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About a month ago a fissure developed near the entrance to my nose , there is a build up around the fissure of what I believe to be either mucus or white blood cells , if I remove the build up on the fissure it comes right back . At around the same time I noticed a very foul smell in my mucus don’t know what that’s about but for several years I had another type of fissure anomaly further back in my nose any this one would scab up and block my air passage on that side of my nose but somehow that one finally healed . I’m not sure what to do or think about the fissure and unpleasant disgusting smell of the mucus.

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