← Return to Financial strain of having multiple autoimmune diseases

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@oldkarl

@mary1121 Sorry to hear that, mary1211. I have multiple genetic diseases, also. however, I have pretty good coverage from Medicare Plan F, UHS, AARP and Humana. However, even with that this is expensive, about $200-$300 dollars per month. I have Gelsolin Amyloidosis, Fukatin Limb Girdle Muscular Dystrophy, Dilated Cardiomyopathy, Cardiomegaly, cancers of nearly all my organs and tissues, multiple encephalopathies, Blepharoplasty, Purpura, Retinitis Pigmentosa, Platelet 4, Esophageal cancers and disorders (Barrett's, etc) Rheumatoid arthritis, psoriatic arthritis, Central and Obstructive sleep apnea, splenomegaly, cracking teeth, brittle nails, and on and on. But a few things I have done right. My doc put me on high dosage of Methotrexate (.80 ml) weekly injection. I take aspirin 81 every day. I Use a BiPAP. Nearly all my meds, including Novolin, are covered by my insurances. I have a general rule about this. If it ain't free or cheap, it ain't worth it. If I start an expensive med, then must quit, I expect death at any moment. So I don't start them if the expense is expensive. And I put a lot of time into learning about my genetic make up. I have genes that fight against psychotic meds; genes that fight against statins; genes that against several kinds of heart disease meds; genes that make me look fat, genes that make my head expand, genes that make Sections 9 and 24 of my brain disintegrate. I am now getting a Full Genome analysis, because the two partials I have had left too many questions. An in the middle of this my endocrinologist wanted to cut my novolin and methotrexate. Instead, I am changing endocrinologists. This is much less expensive than dying from loss of Novolin and Methotrexate. Selah.

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Replies to "@mary1121 Sorry to hear that, mary1211. I have multiple genetic diseases, also. however, I have pretty..."

I also found Methatrexate helped. My teeth were cracking, and apparently Sjogrens' dry mouth is the culprit. I have a mouthguard. Brush 2x daily plus use a waterpik to keep gums in shape. Biotene to avoid dry mouth. Hair/skin/nails gummies help, but cream moisturizer is good too.

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