Your comments about this being a two person disease are rich on. As a person living with LBD - we appreciate you!!! We both see the changes - you might see smaller changes before we realize there is even a change.
We are partners. We cant go it alone. We need you.

Open communication between the patient and caregiver is paramount.
As early as possible - start looking at potential communication issues. You might not think it is important since communication is good now. The changes might be subtle and will build over time. Taking the time to think about communication before it becomes a problem will be something you will be glad that you did.

We are very glad we were able to do that.

Even if we cant say it - know that we truly appreciate everything you do. It may not even like it - but we do love you. Even if we cant say it - even if there is not communication - we love you in our hearts.

My wife - my caregiver - tells me that I take 5 minutes to make a point that should take a minute or less.
If that has happened here - its Lewy talking.

If you would like to know about what it is like from “in here” - a person living with LBD I would be happy to help.

Peace
Larry

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