Confused: Lung cancer, pulmonary fibrosis and more

Posted by shamrock5jeg @shamrock5jeg, May 4, 2021

New to this forum. Actually, never tried any type of forum so I really don't know what I'm doing. Anyhow, after reading some of the posts I guess I am not so bad off. I have lung cancer in my right lung, pulmonary fibrosis, peripheral neuropathy, chronic pancreatitis and just developed shingles last week. Am treating skin cancer on my forehead with fluorouracil cream. Need more radiation for Basel cell on my neck. Left lung cancer was treated with SBRT and is "cured".Right lung is not being treated due to the fibrosis. Still function pretty good, Only take 4 meds. Walking is the biggest problem. Want to dance again, walk, climb stairs, drive a stick shift. Want my legs Back! Sorry I rambled on. My heart goes out the others I read about. Wish they could solve all the problems, it hurts to me to read their stories and makes mine so trivial.

Interested in more discussions like this? Go to the Cancer Support Group.

Lori, Volunteer Mentor | @loribmt | May 13, 2021

In reply to @duckduck2020 "No I am with Theda at Neenah . Dr Geocaris is doing the surgery and she..." + (show)

@duckduck2020 I can certainly understand your hesitancy in getting the ileostomy surgery. And I know you’re tired which makes taking on any new thing yet another challenge. But it sounds as though it’s a vital step in your role to long term recovery from your cancer.

Fighting cancer can be a long, hard battle. Very few of us come out victorious without scars and reminders of our war efforts and some of the indignities we incurred along the way. They become part of our new normal...we accept, adapt and move on. So I hope that you’ll be able to to accept this new ‘accessory’ and remember that it’s part of your battle armor/ammunition!

I re-read some of your past postings and see that you were given some great information regarding the procedure and what it’s like to live with the ileostomy bag.
Do you have any other questions? On Connect we also have an Ostomy group. These members have ‘walked the walk’ and would be able to give you personal insights and offer some positive encouragement. Stay strong, stay positive...you’ve got this!! Lori.

https://connect.mayoclinic.org/group/ostomy/

Lori, Volunteer Mentor | @loribmt | May 20, 2021

In reply to @duckduck2020 "Thank you it is scheduled for 6am on the 19th of May." + (show)

@duckduck2020 Hi! Just checking in to see how you’re doing after your ileostomy surgery yesterday. I know you were dreading having this done but it really can have long term benefits for eliminating the cancer and finally resuming the Chemo treatments.
You may not even see this message for a few days because of your recovery time in the hospital. But I wanted you to know you’re being thought of and good wishes for a speedy recovery are heading your way. Lori ☺️

Nancy, Alumna Mentor | @1nan | May 21, 2021

In reply to @duckduck2020 "No I am with Theda at Neenah . Dr Geocaris is doing the surgery and she..." + (show)

@duckduck2020
I am thinking of you as you begin your new opportunity for healing. Be gentle with yourself and accept care and help in your recovery. There is much reason for hope and I look forward to your posts going forward. Peace, Nancy

Merry, Volunteer Mentor | @merpreb | May 21, 2021

@duckduck2020- How are you feeling? I know that this must be a tough time for adjustments. Any surgery is scary and takes a lot out of a person. I hope that the staff is taking good gentle care of you and that you find their support, understanding, and care a big help.

Don't forget that we are here and waiting to hear about your progress.

Merry

duckduck2020 | @duckduck2020 | May 21, 2021

In reply to @1nan "@duckduck2020 I am thinking of you as you begin your new opportunity for healing. Be gentle..." + (show)

Hello I am still at Theda : maybe today I can go home , it has been a rough road but I am sure once I start to heal I will feel a lot better . They said rather than go through the small bowel disconnect the colon. They were able to go thru the colon.
Also I have a lot of pain right now and that will go away after I get home and relax more.
To make matters worse my brother passed the night before surgery!
Thank you all for caring and thinking about me

Merry, Volunteer Mentor | @merpreb | May 21, 2021

In reply to @duckduck2020 "Hello I am still at Theda : maybe today I can go home , it has..." + (show)

@duckduck2020- Oh, my word, this certainly doesn't help your state of mind! I am so very sorry for the loss of your brother. I have lost a sister. It's strange losing a sibling, don't you think? Shared history and fun times. I recently told my younger sister not to go anywhere because she's my memory!

I hope that you are allowing pain meds. I know that hospitals often stick to 4 hr intervals, but that's never enough. Three hours would be better.

Your frame of mind seems to be in a great state for healing and moving on. I can't wait to hear if you were discharged today!

Lori, Volunteer Mentor | @loribmt | May 21, 2021

In reply to @duckduck2020 "Hello I am still at Theda : maybe today I can go home , it has..." + (show)

@duckduck2020 Aw, I’m echoing my friend, Merry’s comments here... I’m so sorry for the loss of your brother. Knowing what a difficult time this is, my heart goes out to you and your family.

I do hope you’re released from Theda-Clark today to be home with your family. It’s miserable being in so much pain but you’re right, being in the comfort of your own house and on your own schedule, in your own bed brings a sense of contentment and relief.

Take care and keep us posted! Lori.

duckduck2020 | @duckduck2020 | May 21, 2021

In reply to @merpreb "@duckduck2020- Oh, my word, this certainly doesn't help your state of mind! I am so very..." + (show)

Thank you but I will not be coming home today either

Merry, Volunteer Mentor | @merpreb | May 21, 2021

In reply to @duckduck2020 "Thank you but I will not be coming home today either" + (show)

Hang in there! Recuperating is tough!

Nancy, Alumna Mentor | @1nan | May 21, 2021

In reply to @duckduck2020 "Hello I am still at Theda : maybe today I can go home , it has..." + (show)

@duckduck2020 It breaks my heart to hear all that has been happening now includes the loss of your brother. I am so sorry and hope you and your family have time to deal with this in a way that brings you peace. Not going home today isn’t necessarily a bad thing. They want to make sure that you will be successful in handling your post op care on your own. I will be on sidelines with others waiting to hear how things are going. Nancy