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@nanmargaret

Hi estrada53, just joined this forum today. I'm a heart tx recipient and a participant in the Johns Hopkins study.
I had a mysterious inflammation in my left jaw one week post vaccine #1! It was intensely painful with swelling, then resolved very quickly just before I saw my dentist. How strange, because I wondered if it could be related to the parotid gland just in front of the ear.
Hope you are having luck with your research, I gratefully received a young heart, but not a high-risk one.

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Replies to "Hi estrada53, just joined this forum today. I'm a heart tx recipient and a participant in..."

Welcome to our Connect group. Congratulations on your young heart.
Thanks for your response and I'm sorry you had a similar reaction to the vaccine. I have an MRI scheduled to look at the right side of my face a bit more. I still have some swelling but the pain is gone. My research is going well and I am actually also interviewing post TX folks who accepted non-increased risk donor hearts, in case you're interested in sharing your story. Maybe?

@nanmargaret, Welcome to Connect.
Here is a link to the discussion where @estrada53 presents her story and her research project.

Looking to interview transplant patients: Increased Risk Donor Hearts
https://connect.mayoclinic.org/discussion/increased-risk-donor-hearts-risk-and-opportunity/