Any advice for tapering off oxycodone and/or OxyContin?

Hello @sonnys and welcome to Mayo Clinic Connect. Thank you for joining the discussion and Connect. You said you have had 29 years of fighting pain. Are you using, or had you been using, Oxycodone and/or Oxycotin to deal with your pain?

Hello Amanda, thank you for your response. The first 4 or 5 years I used just about every pain pill there is. the Oxys and morphine always helped with pain but I always felt a little hi so I refused to use them for fear of becoming addicted. I have used Tylenol/codeine or aspirin/codeine for years. The Aspirin mix worked best but they stopped making it about 10 years ago. Five years ago I was put on Fentanyl patch, a change I regret. Since pain management has started I am now being treated by someone who has no idea what Parsonage Turner Syndrome is, he asked me how to spell it. Their goal seems to be taking all pain medication from me. The last two years have the been worst of the last 29 years not counting the first 5. A very long painful disease for me.

Hello, @sonnys , I’m so sorry that you have been dealing with the effects of Parsonage Turner Syndrome (PTS) for 29 years. I can certainly sympathize with you. I was diagnosed with atypical PTS a little over 4 years ago. It affects my right arm and both hands. The pain in my right hand is much worse than in my left hand.
I wear compression gloves and take pregabalin (Lyrica) to help relieve the pain. They both help some, but I still am left with a lot of pain.

I’m glad you found this group. There is also a Parsonage Turner Group on Facebook in which you might be interested. I joined Facebook just so I could join this group. It has been very informative and helpful to read about others who also have this condition.

Please feel free to reach out to me if you have any questions or comments. I hope you will find some relief to your pain.