@merpreb I didn’t have much time today but took a quick look at your blog. I love that you have put your experience in writing. I look forward to reading more of your blog. I’m sure it was healing for you to write it but what a wonderful gift to give others who can connect to how your felt.

My first visit to Mayo I saw a pulmonologist when I was staged. I have not seen one since. They do not have me on any inhalers or meds. Bear in mind I was finishing chemo and radiation in March 2020 as COVID was taking hold. My surgery consult was over video. In April 2020 to qualify for surgery my husband and I had to quarantine and my husband could only drop me off at the front door of the hospital when I went for surgery. Six weeks later at my follow up with the surgeon Mayo was like a ghost town. I think they were limiting my trips to MN for appointments. It was a scary time to leave the house with limited breathing and COVID. Recently I connected with a support group where I live and the social worker has given me some great advice. If I had known earlier I should have reached out to one at Mayo to help me navigate things. I look forward to seeing the pulmonologist.

I feel better knowing your surgery recoveries took about a year. Maybe I’m close to rounding a corner!
Juliette

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