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ttibsen (@ttibsen)

Immune Response While on Chemo

Cancer | Last Active: May 18 6:10pm | Replies (10)

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@ttibsen

Lori and Nancy
Thanks for you kind responses to my query. It's been very helpful to get your input and I have already marked in my calendar, the date when she should ask for the Spike antibody test. She gets blood draws all the time and yes Lori, you are right – she is tired of all the blood draws since it's become increasingly difficult for the techs to find and then get inside the veins for the draws – the veins are that scarred now – so the draws have become a bit of an ordeal.
Sarah, our only child, is 41 – a mother of 2 kids aged 4 and 9 – and this July will mark 4 years that she has been living with glioblastoma for which the initial treatment was surgery, chemo and radiation. She's had 2 recurrences, with surgeries for each recurrence, and I don't like to investigate the possibilities too closely for fear of what I may find, but I don't think that there will be another surgery for the next recurrence.
So we are coping as well as could be expected, since 4 years is a long time to acclimatize to almost anything but there's no question that we have been living under a dark cloud for all this time.
We live in Canada and Sarah lives in San Francisco which is fortunate since not only does she get superb, first-class medical care there through UCSF, but she gets to live at home during all phases of her treatment, which wouldn't be the case if she were still with us in small town northern Canada.
I don't want to end my thread on a gloomy note so I should tell you that with all three surgeries, she has bounced back in an incredibly short amount of time and we never noticed any major side effects from the surgery. If you were to meet her, you would never guess that she's afflicted with glioblastoma so we're very thankful for that.
The most obvious sign of her illness is the side effect of the chemo – at this stage she can't make it through the day without a 4 hour afternoon nap but aside from that – when she's up – she's bright, alert and functions normally – in fact, she's undertaken major house renovations which I didn't think was such a great idea but of course she's free to do what she wants and it's probably good for her mental well being.
So there you have it – a brief story of parents with a child who has cancer and while undeniably tragic, there are a lot of things to be thankful for in our journey. – John

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Replies to "Lori and Nancy Thanks for you kind responses to my query. It's been very helpful to..."

John, thank you for so eloquently sharing your story and your daughter’s story of her glioblastoma journey. As a parent, I can certainly appreciate that dark cloud hovering over your heads throughout her experience. But wow, you are all handling this with such grace and positivity…keys to survival and coping well. Truly inspirational.

I love Sarah’s indomitable spirit. It’s important for her to keep pushing forward. I can understand your reticence with her taking on major house renovations, but it serves as a much needed distraction for her. Also it provides a sense of normalcy and hope for the future. She sounds like an amazing young woman…taking after her parents, no doubt. ☺️

Are you and your wife able to travel to visit with Sarah and her family?

John, your post caught my eye. I am so sorry for all your daughter, and all of you, are going through. That blood draws are so difficult for her makes my heart go out to her even more. Could getting a port put in be an option for her? She would then be able to get her blood draws through it, and it might make it much easier on her. For me, mine has been a Godsend. Perhaps this has been considered and is not an option, with good reason from the doctors. In that case, I apologize if I have intruded. Your daughter will be in my thoughts and prayers.

Hello again, @ttibsen, just wishing to offer you a ray of light and a glimpse of hope in your brave battle with your daughter against her cancer. I wanted to add that my middle son (of three sons) had surgery and radiation for a malignant brain tumor when he was thirteen years old. Worse time of my life. Now, he's a strappin' good 'ol boy of 59 years, a father of two, and grandfather of two! Hugs. Laurie