Never Smokers & Lung Cancer

Posted by Linda @llwortman, Oct 26, 2016

I Never smoked and was properly diagnosed & properly treated with VATS surgery that removed a 3cm tumor, my upper left lobe and a wedge in my lower left lobe, at Mayo Clinic RST by an amazing team...I am so grateful to be alive alive almost 9 years later;-)

It's a shock to hear the words, "You have lung cancer" but in 72 hours I was in life saving surgery! It was difficult to breathe & my husband stood by my bedside and said, "Breathe, Breathe, Breathe!"

I will never forget sitting in Nicotine Rehab, required by insurance...even though I neVer smoked, and hearing the shocking lung cancer statics! I also realized physicians & surgeons and their teams may feel the ugly lung cancer stigma.

Through research and also through personal experience I realized the Stigma is unfair. It made me so mad I decided to started running, 3 years after surgery. to prove there can be quality of life after lung cancer. I ran a 5k race in 50 states and I Often finished 1st in my age group!

I started running a 10k in every continent 2014. But that was interrupted when I was invited to the Kili Heart Climb this summer Aug 2016.
I think I am the only lung cancer survivor to summit Mt Kilimanjaro, Africa. There was a Mayo Clinic Research Team "watching & testing"
our every move. I love a challenge.

Honestly walking heal toe to the peak was almost as challenging as breathing was after lung cancer resection! But I made it to Uhuru Peak! This would not have been possible without so many wonderful souls! I can't wait until mountain testing results are in! Watching thecresearch teams work was amazing! Do they ever find time to sleep?

My husband & I started a foundation to create lung cancer awareness and lung health awareness so lives can be saved and research finds can be raised for lung cancer the #1 cause of death Lung Cancer killer.

We sponsor Running Lungs 10k 5k and 2k Run/Walk/Fun events to raise awareness and research dollars.

So this is your invitation to participate with us and help us create the best quality of life possible for lung cancer families and patients,

Kudus to all of my doctors and everyone at MayoClinic...including the work of everyone Rochester. I am so grateful.
Again Thank You. Let's get A lung cancer support group together and shake out a cure!
Hugs,
Linda
Oh, come join us No v4th at 4pm at Soldiers Field you can walk run or just say hi!
If you participate you will receive some nice swag!

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Keeping active and pushing through the pain and struggles while pace breathing has given me a great quality of life, despite the stigma.
My medical teams at Mayo Clinic were my strength. Sitting is still my enemy. If I do not move, I have breathing issues. Changing Your Brain Study by Dr Amit Sood and the book Happiness helped me in so many ways fight and beat this crazy disease. The research studies Mayo Clinic doctors afforded me, gave me HOPE. And the DNA study we signed up for at Mayo Clinic has been very revealing.
Now there is a lot of studies about Artificial Intelligence that is very promising.
Tell your dad to get his sleep, earth a very good diet, and start with baby steps and learn how to pace breath and eventually he can run with me & you, too!
I look forward to connecting!

REPLY
@burrkay

Thanks Linda for your kind words.
We finally got some good news today...the bone marrow biopsy done several weeks ago came back all negative...no leukemia-yeah!
Now if we can get a good alternative therapy from the genomics study we will be elated!
I ordered the book today...hoping it will brighten our lives with happiness!
All the best!
Bill

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Hi Kay & Bill:
We have been thinking of you both! Sending warm wishes.
Best,
Linda

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Hi, my name is bre. I have a 9 mm lung nodule, mildly speculated with ground glass effect less likely to be from infection. I get to have another CT SCAN no contrast April 23rd and my appointment with Mayo Clinic is May 2nd......i am very scared but want it out of me but they have to determine if the ground glass effect is soft tissue cancer and if my nodule is either. I never smoked but grew up in a house where parents smoked two plus packs a day and then worked with mentally ill people in they're homes while they all smoked for 26 years as well as grew up friday and Saturday night in the local bars with people whom smoked. I am very terrified right now. I also have sleep apnea and had my bipap fixed by hammer medical back in the day. I couldn't stand the smell of the glue that stunk for months so i just put vicks in my nose......

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@breochoa

Hi, my name is bre. I have a 9 mm lung nodule, mildly speculated with ground glass effect less likely to be from infection. I get to have another CT SCAN no contrast April 23rd and my appointment with Mayo Clinic is May 2nd......i am very scared but want it out of me but they have to determine if the ground glass effect is soft tissue cancer and if my nodule is either. I never smoked but grew up in a house where parents smoked two plus packs a day and then worked with mentally ill people in they're homes while they all smoked for 26 years as well as grew up friday and Saturday night in the local bars with people whom smoked. I am very terrified right now. I also have sleep apnea and had my bipap fixed by hammer medical back in the day. I couldn't stand the smell of the glue that stunk for months so i just put vicks in my nose......

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@ breochoa- Good morning and welcome to the lung cancer group. We have all experienced the fear that you are feeling right now. It's certainly a normal and expected feeling of the unknown. The only thing that I can advise you on this is to handle your fear and anxiety the way you have in the past when you have been upset. You will be surprised at your strength. Fear is a good thing. Firstly it keeps you alert and aware of any changes that you might feel.

WHat symptoms brought you to your first CT scan? Do you have a Pulmonologist as yet?

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