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Jestersgal (@jestersgal)

Polycystic Liver and Kidney Disease

Kidney & Bladder | Last Active: Jun 28, 2015 | Replies (20)

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@ridingfenceson6

HELP is all i can say…i suffer severely with this horrible disease and transformation to my life style and just life itself

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Replies to "HELP is all i can say...i suffer severely with this horrible disease and transformation to my..."

HI,
Do you have both pkd and pld. Have you been to the mayo? I found out I had pkd about 25 years ago. And pld maybe 15 years ago. I look like I am 7 months pregnant and I am only 5’2″ so not very big. I have lost a lot of Muscle mass and fat due to not eating alot. Went to the Mayo in July 2011 and my best option now is Kidney and liver transplant. Now the waitlng game begins.

Hi again, I see you have answered my questions already!! I haven’t been diagnosed with PKD but they are watching things closely. I guess its unusual to have so many cysts and not have PKD.

May I ask how you have handled your inability to eat? I’ve been on a liquid diet for the last four months now and my GI doctors don’t know what to do to make things better. I’m hopeful that the doctors at Mayo will have more options/suggestions.

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